For the first time ever, the EU has funded a multi-centre clinical trial in Europe to develop evidence-based clinical management guidelines for patients suffering from myotonic dystrophy type 1 (DM1).
DM1 is a form of muscular disorder affecting over 75 000 people in Europe alone. This chronic, inherited, progressive and multi-systemic disease has no cure. In addition, health care facilities for DM1 patients and their families are often sub-optimal as the disease is rare and the patients are no assertive members of society due to brain and behaviour involvement.
Further information: The trials of muscular dystrophy